8:00     Welcome, team updates and COVID coping

8:20      Review roles, mission and vision

Vision: All South Carolina children and families who are facing serious illness will have access to comprehensive pediatric palliative and hospice services.

Mission: The members of the South Carolina Pediatric and Palliative Hospice Care Collaborative will enhance access to pediatric palliative care resources and support for patients, families and healthcare professionals through efforts aimed at education, advocacy and clinical care.

8:30     Advocacy Updates

                        Recent:

• DNR in the community/POST status
• BabyNet services for those receiving hospice/MCCW services
• Payment structures for outpatient PC/care coordination/CAPC Innovative partnerships
• Concurrent care billing in inpatient setting
• Telehealth usage and reimbursement
• Other

                        Ongoing:

• Foster care
• Home nursing
• Respite
• Bereavement resources statewide (availability during COVID?)
• CMS
• Other

9:00     Education

• Article update
• Enhanced fellowship training, advanced certifications for providers
• Non-palliative health professionals
• General public
• Other

9:20     Clinical Care

• Service limitations
• Improving communication between hospital and home-based care providers
• Financial value of services
• Proposed retrospective chart review (number new consults and individual age, payer, zip code, diagnostic category mapped to CAPC registry, medical technology, alive/not alive at end date of study)
• Also proposed tracking of consult timing relative to admission, symptom burden, goals of care concordance
• Department/institution quality initiatives

9:40      Wrap-Up and next steps

Supplement:

There has been email discussion about BabyNet services for children receiving MCCW and/or hospice care. In brief, there was concern that children with MCCW or hospice coverage were being denied payment for OT/PT/speech/vision through BabyNet. Dr. Sharon Beall with HOH has been communicating with DHHS staff and has received the following information:

1. Children with MCCW and/or hospice coverage are guaranteed payment for therapies but therapies are not provided through BabyNet (as this program has limited funding). Referrals for therapy should be directly to therapy services and not to BabyNet for children receiving MCCW or hospice services. Dr. Beall has requested and is awaiting written clarification of the referral process from DHHS. Families wouldn’t receive Early Intervention therapies. Dr. Beall feels that Child Life services will fill some of that void or patients receiving hospice care. Resources for MCCW, non-hospice patients may be limited.

2. Historically, there has been a limited number of home therapy companies willing to provide in-home services to patients with Medicaid who are not enrolled in BabyNet. This may be a problem for some families, particularly those in rural areas.

Further discussion at the meeting