10:00 – 10:20   Welcome, team updates and introductions

 Item updates from last meeting:

• BabyNet referral issues
• DNP program at MUSC
• Telehealth discussions for ongoing coverage
• Article
• Health care economist identification at each institution-success?

10:20 – 11:00   Working groups structure and comment period: 

• DNR/POST
• Bereavement
• Metrics and Shared data
• Education – general public and professionals
• Family Satisfaction Survey
• Payment and Telehealth
•  Home nursing and respite                         

11:00 – 11:10                Membership expansion to include other sites, subspecialists (oncology, neurology, pulmonology, PICU), and/or family/community members?

11:10 – 11:20               CAPC survey

11:20 – 11:30               Other considerations and wrap-up

11:30 – 12:00               DSS Consent policy discussion with Gwynne Goodlett, JD with DSS

Vision: All South Carolina children and families who are facing serious illness will have access to comprehensive pediatric palliative and hospice services.

Mission: The members of the South Carolina Pediatric and Palliative Hospice Care Collaborative will enhance access to pediatric palliative care resources and support for patients, families and healthcare professionals through efforts aimed at education, advocacy and clinical care.